United States. Health data. Act
GINAGenetic Information Nondiscrimination Act of 2008 (GINA)
Partly verified
Medium confidence.Source read: Wikipedia only; enforcement mechanisms and separate Title I/II effective dates not stated there. The listed agencies are from general knowledge and not confirmed in the source. Text link opened on LII (42 U.S.C. 2000ff). LII note: Title II (employment) takes effect 18 months after enactment, i.e. about 21 Nov 2009 (calculated); 2008-05-21 is the enactment date and Title I's date was not checked.
§1Summary
- Synopsis
Prevents health insurers and group health plans from denying coverage or charging higher premiums based on genetic predisposition, and employers from using genetic information in hiring, firing, placement or promotion.
- Key themes
- Unique features
Protects genetic data specifically; does not cover life, disability or long-term-care insurance (not verified in source read).
- SaaS relevance
Relevant to HR and benefits platforms and wellness programme providers that handle genetic information.
§2Obligations
- Breach notification
- None
- DPO
- No
- Cross-border transfers
- None
§3Dates
- Key dates
- Adopted
- In force
- Pub. L. 110-233 signed 21 May 2008. EEOC amended its GINA regulations 17 May 2016 on wellness programmes, effective 16 Jul 2016.
§4Text and authority
- Text
- Authoritative text law.cornell.edu
- Authority
- Equal Employment Opportunity Commission; HHS; Department of Labor
§5Where it applies
- Domestic law of
- United States
- Also applies in
- Alabama
- Alaska
- Arizona
- Arkansas
- California
- Colorado
- Connecticut
- Delaware
- District of Columbia
- Florida
- Georgia
- Guam
- Hawaii
- Idaho
- Illinois
- Indiana
- Iowa
- Kansas
- Kentucky
- Louisiana
- Maine
- Maryland
- Massachusetts
- Michigan
- Minnesota
- Mississippi
- Missouri
- Montana
- Nebraska
- Nevada
- New Hampshire
- New Jersey
- New Mexico
- New York
- North Carolina
- North Dakota
- Ohio
- Oklahoma
- Oregon
- Pennsylvania
- Puerto Rico
- Rhode Island
- South Carolina
- South Dakota
- Tennessee
- Texas
- US Virgin Islands
- Utah
- Vermont
- Virginia
- Washington
- West Virginia
- Wisconsin
- Wyoming
§6Sources and verification
- Sources consulted
- Verification
Medium confidence.
Partly verified
Medium confidence.Source read: Wikipedia only; enforcement mechanisms and separate Title I/II effective dates not stated there. The listed agencies are from general knowledge and not confirmed in the source. Text link opened on LII (42 U.S.C. 2000ff). LII note: Title II (employment) takes effect 18 months after enactment, i.e. about 21 Nov 2009 (calculated); 2008-05-21 is the enactment date and Title I's date was not checked.